Monday, April 16, 2012

The scoop

I thought I'd pop on here real quick and write a summary of what we know to this point. For those of you who don't know, I spent 7 days at Memorial Hospital last week, after my convulsions got so bad that I couldn't breathe at times, and was losing the ability to speak and swallow at times. There is so much I could write, but for now, I'm going to try to give a brief summary of the facts to bring everyone up to date.
The doctor at the hospital put me on Depakote for my convulsions (called convulsions and not seizures because even though they may look like seizures to us lay people, they do not present as true seizures). Depakote is also used to deal with depression, so they have me on it as an anti-depressant as well. They also put me on klonopin for anxiety, because the doctor said that with the overwhelming changes in my life right now, and all the emotions that come along with them, as well as the renewed energy that the Depakote should bring, with my history of anxiety, my risk of becoming suicidal is elevated, and the klonopin should reduce that. Currently, those are the only two medications I am on.
My EEG results were non-conclusive. The first MRI I had showed a cyst on the brain, as well as several areas of demyelination. The second MRI showed no cyst, but still showed the lesions. Because my symptoms closely match (as in, are nearly identical to) those of my older sister Katie, who has had MS for 15 years, and because of the lesions on my brain which are a common indicator of MS, the hospital doc highly suspects that I have MS. I have an appointment with my neurologist tomorrow to look into that more and do further testing. The hospital doctor said that if the neurologist doesn't take me seriously (as is often the case with patients with MS), I need to request a referral to a different neurologist.
There was some talk while I was at Memorial Hospital of sending me up to San Francisco, but for now, we are going to try to get as much done locally as we can. There may come a time when I will need to see a specialist in San Fran, but right now, we're trying to take it one step at a time and not jump through unnecessary hoops.
Because of my convulsions, the DMV has pulled my license, so I am unable to drive and probably won't be driving for a very long time, if ever again, which means drastic changes in our lives. Currently, the kids are in a school out of district. Because they only have six weeks of school left, we will do what we need to do to let them finish the year there, but next year, we will need to get them into a school that is on our bus route and/or within walking distance. We have not told them this yet because we don't know exactly what our plan is. Our apartment lease is up June 30th, and we are looking at moving somewhere closer to a school and to some of my friends, because I'm definitely NOT a home body and the thought of being stuck at home for days on end with no one to talk to makes me want to weep.
Anyway, there is so much going on right now, but I hope that gives some clarification to those of you who were asking. Please feel free to ask any questions you may have. I will try to update more after my appointment tomorrow morning.

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